Video: Pregnant firefighter with ALS takes ice bucket challenge
Amanda, 30, has the most aggressive form of ALS and is due to deliver a daughter in early November
MADISON, Conn. — Amanda Bernier, six months pregnant and suffering from ALS, joins the growing Ice Bucket Challenge craze to raise awareness and money to find a cure for ALS, known as Lou Gehrig’s disease (amyotrophic lateral sclerosis).
Posted on the Amanda’s Angels/ ALS Facebook page, the 42-second video shows Amanda doing a "modified" challenge, lowering her feet in buckets of frigid water from the confines of her wheelchair at Yale-New Haven Hospital with a nurse at her side. At the end, viewers can hear a beep, signaling her heart rate increasing due to the sudden cold, (according to the post by the administrator of the page).
"That’s pretty cold," she says, wincing and smiling. A progressive neurodegenerative disease that causes the deterioration of motor neurons, Amanda, 30, has the most aggressive form of ALS and is due to deliver a daughter in early November. Many in Madison know Amanda from her job as a Madison firefighter, with her husband, Chris Bernier.