NBC Connecticut
MADISON, Conn. — North Madison volunteer firefighter Amanda Bernier was diagnosed with ALS last year, just two weeks after she found out she was pregnant.
Now paralyzed by the disease that runs in her family, she’s participating in the ice bucket challenge and calling on the “Tonight Show”'s Jimmy Fallon to help her find a cure.
“I watched him every night in the hospital and even before that,” Bernier said, speaking through an eye-tracking device. “It’s wonderful to go to sleep with a smile on my face.” Because she has a specific gene, Bernier is battling one of the most aggressive forms of ALS. She was able to give birth to a healthy baby girl, but Bernier’s condition has gotten worse.
Full story: North Madison Firefighter Battling ALS Challenges Jimmy Fallon